I still have a headache today and my neck is feeling better thanks to the pain pill I took last night. I went and had my bloodwork done early this morning and yes chemo definitely starts tomorrow.
You guys I'm dreading this!!! It's like so surreal to me now because it's finally here. I think mom is getting panicked too. But she's putting on a good front. She told me today that she loves me but she's not sitting in that chemo suite with me for 4-6 hours, so she can be snoring and get totally embarrassed.
Yeah right you don't want to watch the poison run through me. I get it. She said she'll stay for a while but not the entire time :(
I'll probably be asleep anyways. Gotta pack a bag to take with me like I did when I went for my first blood transfusion. You know a good book, a mag or two, my suduko game, a word search book, my hardback journal, snacks, my blanket and some clorox wipes *last time I was there it was only one bathroom that everyone used, massive YUCK!!!* and nobody wiped down the chairs when one person left from just having chemo, or a shot. Hell I had a damn blood transfusion and I was creeped the hell out by someone else's blood pumping though my veins. Just germs every.damn.where. ICK!!
Not to mention an elderly man who had to urinate sitting right there *curtains drawn of course* but still, because he couldn't walk.
Yours truly was leaving before the curtain was drawn again so I don't know how they handled the clean up behind that one. Plastic bottle urinal and all. *shudders* Ewwwwww!!!
Ok so at 11:00pm I have to take 5 tablets of Dexamethasone and at 5:00am I have to take another 5 tablets. This is a steroid that is supposed to help with my immune system. Then tomorrow if I feel sick after chemo, I'm to take one tablet of prochlorperazine every 8 hours as needed and one tablet of pantoprazole every day for 30 days. *sigh*
Then another cycle of chemo in three weeks. Six cycles in all.
Oh and you know I'm going to see my Dollface tomorrow beforehand. I just can't stay for the whole competition. That will perk me up for sure!
I'll update on how I really feel after tomorrow is over.
I can't believe it either.
Showing posts with label Doc crap. Show all posts
Showing posts with label Doc crap. Show all posts
Thursday, February 19, 2009
Tuesday, February 17, 2009
Doctor crap
So I went to the University a couple of weeks ago to see if they had any clinical trials going on per my oncologist. They were very thorough in their assessment of me but much to my chagrin, they didn't have any trials for my particular cancer. You know that rare shit that I have. Some kinda sarcoma *carcinosarcoma with features of adenocarcinoma* that is aggressive as hell and has docs all up in arms and shit. Six rounds of chemo have been suggested. That will take me well into June possibly July. I ain't looking forward to this at all.
I haven't been scared outta my skull YET but these last few days, oh boy I have come quite close. I don't need an exorbitant amount of time alone because that is when my mind plays tricks on me. Tricks like, oh gurl you know when they spout that rare, aggressive shit that means your ass is grass, or will be under the grass shortly.
Not good, not good in the least bit. Especially when you hear, "Oh you're so young to have THIS type of cancer."
Um, excuse me, what type of cancer should I want to have? I'll take none please for $1000.00 Alex.
My goodness it feels like a million years since I've been diagnosed but it's only been 4 months. Probably feels so long because of all the crap I've been through.
Nov. 16, 2008 - Radical Hysterectomy and then two days later released from the hospital
Two weeks later readmitted for suspected abscess of the abdomen and released five days later.
Two weeks later readmitted again for massive bleeding possible vaginal cuff injury which later turned out to be tissue breakdown. Resulted in another (emergency) surgery. Stayed in the hospital 8 long ass days and contracted the most awful CD.IFF. infection. Released from the hospital on Christmas Eve feeling like death warmed over from the infection. I lost my appetite and didn't eat the entire time I was there. The massive diarrhea didn't help matters either. That lasted three hellatious long weeks.
With the help of probiotics *suggested by the best blogger buddy and her sister ever* I finally started to feel like myself around the first or second week in January and here you have me still waiting for chemo on this second week in Feb.
Things just don't seem to be going my way. I was supposed to have a portacath implanted last week and my surgeon had an inhouse emergency so my surgery was cancelled, or postponed until this week. I'll find out what time I actually will have it implanted later on today.
Then chemo will start.
Six cycles of carboplatin and paclitaxel. Whoo hoo!!!!!!! NOT!!!
The oncologist is rabid!!! Well not rabid but really wanting to get me started ASAP because this cancer is soooooooo aggressive and THAT scares me. She scares me with the intensity of wanting me to get this poison shot all up in me and QUICKLY.
I call myself looking for stories of survival and all that good ish and what do I find but the survival rate for this cancer is like a lousy 10%. Dahell????
I swear I'm trying really hard to stay upbeat and positive but it's getting difficult. My dreams are starting to pressure me too. I dream vividly and most of my dreams come true.
I wanna dream about beautiful endings that let me live out a long life filled with good health and all that jazz. But all I can come up with is you ain't gonna make it dude. Doesn't look good for you dude. That mountain is too high to climb dude!!!
DAMN!!!!!
I hate having cancer!!!!!!!
I haven't been to a support group yet because I thought I was dealing well with this but um, now, not so much. I feel like I'm losing and I haven't even begun yet.
I was really sad today and usually a drive in my car with the sun shining down on my skin makes me feel better but it didn't cure me today. I kinda just wallowed in my sadness for a while. I have to let myself feel that sadness and not just throw roses and shit and say all is well all the damn time.
FUCK YOU cancer!!!!!!!!!
Someone told me never put cancer in CAPS. If I never put it in caps will it promise to go away?
Far, far away????
I haven't been scared outta my skull YET but these last few days, oh boy I have come quite close. I don't need an exorbitant amount of time alone because that is when my mind plays tricks on me. Tricks like, oh gurl you know when they spout that rare, aggressive shit that means your ass is grass, or will be under the grass shortly.
Not good, not good in the least bit. Especially when you hear, "Oh you're so young to have THIS type of cancer."
Um, excuse me, what type of cancer should I want to have? I'll take none please for $1000.00 Alex.
My goodness it feels like a million years since I've been diagnosed but it's only been 4 months. Probably feels so long because of all the crap I've been through.
Nov. 16, 2008 - Radical Hysterectomy and then two days later released from the hospital
Two weeks later readmitted for suspected abscess of the abdomen and released five days later.
Two weeks later readmitted again for massive bleeding possible vaginal cuff injury which later turned out to be tissue breakdown. Resulted in another (emergency) surgery. Stayed in the hospital 8 long ass days and contracted the most awful CD.IFF. infection. Released from the hospital on Christmas Eve feeling like death warmed over from the infection. I lost my appetite and didn't eat the entire time I was there. The massive diarrhea didn't help matters either. That lasted three hellatious long weeks.
With the help of probiotics *suggested by the best blogger buddy and her sister ever* I finally started to feel like myself around the first or second week in January and here you have me still waiting for chemo on this second week in Feb.
Things just don't seem to be going my way. I was supposed to have a portacath implanted last week and my surgeon had an inhouse emergency so my surgery was cancelled, or postponed until this week. I'll find out what time I actually will have it implanted later on today.
Then chemo will start.
Six cycles of carboplatin and paclitaxel. Whoo hoo!!!!!!! NOT!!!
The oncologist is rabid!!! Well not rabid but really wanting to get me started ASAP because this cancer is soooooooo aggressive and THAT scares me. She scares me with the intensity of wanting me to get this poison shot all up in me and QUICKLY.
I call myself looking for stories of survival and all that good ish and what do I find but the survival rate for this cancer is like a lousy 10%. Dahell????
I swear I'm trying really hard to stay upbeat and positive but it's getting difficult. My dreams are starting to pressure me too. I dream vividly and most of my dreams come true.
I wanna dream about beautiful endings that let me live out a long life filled with good health and all that jazz. But all I can come up with is you ain't gonna make it dude. Doesn't look good for you dude. That mountain is too high to climb dude!!!
DAMN!!!!!
I hate having cancer!!!!!!!
I haven't been to a support group yet because I thought I was dealing well with this but um, now, not so much. I feel like I'm losing and I haven't even begun yet.
I was really sad today and usually a drive in my car with the sun shining down on my skin makes me feel better but it didn't cure me today. I kinda just wallowed in my sadness for a while. I have to let myself feel that sadness and not just throw roses and shit and say all is well all the damn time.
FUCK YOU cancer!!!!!!!!!
Someone told me never put cancer in CAPS. If I never put it in caps will it promise to go away?
Far, far away????
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